Tuesday, 29 May 2012

Work on 8% now in full flow

Last Sunday was another remarkable day.  It was the second time I'd worked with Fiona and Ross, only this time around, it was just them and me.  Jamie their son with Downs Syndrome and Ellie were with their grandparents and we spent an hour together, in the garden talking about the time when they heard that Jamie would be affected by Downs Syndrome and how they reached their decision to go ahead with the pregnancy. Fiona is expecting their third child due in August.

 In the end we had lunch and then spent around an hour talking and once again I was struck by how determined those who are willing to participate in the project are to share their experiences. I think its because they know how they felt before the baby was born and then were surprised how different their lives were in a positive way afterwards.  They feel they have a great secret that they are determined to share.  Did the audio in much more controlled surroundings and then shot some video (as I received the Nikon D800 this week). Once again photography has provided me with the key to very personal experiences and I feel so privileged when people trust me enough to let me into their lives.

The photo below was taken during the interview - Fiona always thought carefully before responding and Ross would often sit quietly in the background listening.

Tuesday, 15 May 2012

Alex and what makes him unique

The feedback on the project around Alex and the Stigma project was very good and the final piece can be viewed here.

Alex pdf

The concept behind this 'net' is to show that there are a number of dimensions to Alex and that he should not be seen as just someone who has Aspergers.  He is a remarkable fella who has developed coping mechanisms through the use of rehearsal (the clapper board image) and faces challenges sometimes in group situations (The crowd image).  He is very talented having just completed a cooking course at the local college and is an expert at the incredibly complex role playing game 'Magic'.  He recently 'whupped' allcomers in a local competition.  And so Alex is as unique as we all are.  His aspergers is just another aspect of him as are his many other talents.  Thanks Alex for your patience and for being such a willing victim - you are a star... G

Note: Note that the content and concept here are copyrighted and I'd ask that you respect that. Thanks G

8% makes progress

This week has seen some good progress with 8% and I have two new assignments scheduled and that always feels good.  I'm also working closely with Downs Syndrome Scotland to establish if we can partner on the book and our US based publishing adviser has reviewed the scoping document and feels the book will be a success.